New Podcast Alert! Duchenne Muscular Dystrophy: What Truly Matters to Patients and Caregivers. Steve Kheloussi shares insights on treatment options, evidence gaps, and the critical role of patient and caregiver priorities in rare disease care. 🎧 Listen now: https://hubs.li/Q03Yw94T0 Supported by ITF Therapeutics. #weareamcp #managedcare #raredisease | AMCP
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New Podcast Alert! Duchenne Muscular Dystrophy: What Truly …
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Ep. 49 - Duchenne Muscular Dystrophy: What Truly Matters to Patients and Caregivers | Steven Kheloussi, PharmD, MBA, FAMCP
Ep. 49 - Duchenne Muscular Dystrophy: What Truly Matters to …
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linkedin.com
We are thrilled to announce the launch of Beyond the Diagnosis: Duchenne Perspectives, a brand-new podcast series brought to you by Jett Foundation! 🎙️❤️ This podcast will provide the community with informative, supportive, and engaging content that goes beyond the medical diagnosis. The series is hosted by Jessica Campbell, MSW, Jett Foundation’s dedicated Social Worker. 👂 Ready to listen? The first five episodes are available here: https://open.spotify.com/show/0qDUWVfKQMSjNEQMPXrakl | Jett
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uky.edu
Wondering how to ask for support in navigating Duchenne muscular dystrophy? Find resources ranging from Q&As to a doctor discussion guide on We Speak Duchenne: https://bit.ly/4mIcr0L | We Speak Duchenne | Facebook
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Connor is a young man living with Duchenne muscular dystrophy. On the very first day of filming his story, he suffered a fall that left him with a broken hip and foot. This is the reality of living with Duchenne. Duchenne is a progressive condition that weakens the muscles, steals mobility, attacks the heart and lungs, and cuts lives short. But Connor’s story is also one of strength, honesty, and resilience in the face of challenges many of us cannot see - showing us the courage and determinatio
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