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How a fear of inadequacy affects my ability to respond to crises
As a parent, columnist Joe MacDonald must work to overcome a fear of inadequacy in caring for his sons who have hemophilia.
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Delayed diagnosis common in AHA, affecting 1 in 3 patients: Study
A delayed diagnosis is common for people with acquired hemophilia A (AHA), according to a new study that found that it took ...
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Clotting factor proteins may affect bone cell activity, study finds
Clotting proteins missing or are defective in hemophilia can directly affect the activity of cells responsible for bone ...
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One Drop’s impact on those with ultrarare bleeding disorders
Columnist Jennifer Lynne attends the recent One Drop conference, which focused on ultrarare bleeding disorders.
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When I was ill, I learned that factor infusion waits for nobody
Columnist Joe MacDonald recalls having bronchitis yet having no other choice than to continue his son's factor infusion.
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In preparing for surgery, I’m borrowing strength from my sons
MacDonald feels anxious while preparing for spinal surgery, but recalls her sons' bravery in the face of hemophilia.
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Infusing hemophilia meds attracts ridiculous comments
Jennifer Lynne, who has hemophilia B, shares a ridiculous comment she gets when people find out she can start her own IVs.