After years of focusing on her large family, and three sons with Duchenne MD, columnist Betty Vertin is eager to reconnect with friends.
When Ingram became Sarepta Therapeutics’ CEO in 2017, he didn’t have a connection to muscular dystrophy, but he has developed ...
Why hello everyone! And welcome to a new column I like to call A Disabled Woman’s Guide. OK, it’s a working title, but you ...
An El Paso mother traveled to Washington, D.C., this week to advocate for her 14-year-old son, who is living with a rare ...
Daniel and Lindsey Flessner are pictured with their sons, Mason and Dawson. Daniel and Lindsey Flessner are pictured with their sons, Mason and Dawson. To pitch a ‘My Turn’ guest column, email ...
After a rocky 2025, Sarepta Therapeutics’ executives admit they have work to do to bring patients back into the fold as sales of Duchenne muscular dystrophy gene therapy Elevidys continue to decline.
This award honors an emerging leader shaping the future of neuromuscular research will be presented at the 2026 MDA Clinical ...
Sen. Roger Wicker urges states to add Duchenne muscular dystrophy to newborn screening, after federal health officials back ...
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